Disability Connection

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  • Jan, Wed, 2013

Christopher Reeves Foundation Peer Mentoring Program

From Bill Cawley, Director Peer & Family Support Program

Christoper & Dana Reeve Foundation

“Would you be interested in becoming a certified Reeve Foundation Peer Mentor at the upcoming training in New Orleans, Louisania?

The Reeve Foundation has scheduled a one-day peer mentor training on January 22, 2013. This is the only training we have scheduled for the New Orleans area, so if you are interested we strongly urge you to apply. Apply for consideration at www.reevepeermentor.org.

There is a significant gap in care and services for people living with paralysis, their family, friends and caregivers. The Reeve Foundation is looking to fill that void with our Peer & Family Support Program, a national peer mentoring program. You can help by becoming a Reeve Certified peer mentor.

The Reeve Foundation’s Peer & Family Support Program mission is to empower people living with paralysis, their families and caregivers by helping them to live full, healthy, active lives. By sharing emotional support, honest advice and real-world experiences with people seeking support, a peer mentor helps to improve the lives of others dealing with the many unique challenges faced by our community.

The Reeve Foundation is actively seeking people living with paralysis, family members and caregivers to become volunteer peer mentors. The people who can have the greatest impact on others’ lives are those who have been there and are thriving. A Reeve Foundation peer mentor will go through a specialized certification process that will include on-line work in advance of an on-site training.

Are you interested in becoming a Reeve Foundation Peer Mentor? Apply for consideration at www.reevepeermentor.org.

To inquire about the Peer & Family Support Program, please contact the Paralysis Resource Center at 800-539-7309 or email Bill Cawley at bcawley@christopherreeve.org.”

  • Dec, Thu, 2012

Dance of the Hands

The Thousand-Hand Guanyin

Besides being astounding simply because of the tight coordination required, all the performers of the Thousand-Hand Guanyin in this video are deaf-mutes. The dancers rely only on signals from trainers at the four corners of the stage.

The first major international debut was in Athens at the closing ceremonies for the 2004 Paralympics.   However, the Thousand-Hand Guanyin has long been in the repertoire of the Chinese Disabled People’s Performing Art Troupe, and has been performed in more than 40 countries. The lead dancer is 29 year old Tai Lihua, who has a Bachelor’s of Arts from the Hubei Fine Arts Institute. The video was recorded in Beijing during the Spring Festival this year. Please enjoy!

Dance of the Hands

  • Dec, Sun, 2012

Cafe TA Center Presents a newsletter on Medicaid Expansion

cafe ta

Courtesy of The Family Cafe:

“The CAFE TA Center has developed its newest Focus newsletter to examine one of the biggest changes to healthcare on the horizon:

Medicaid expansion

Right now, states are deciding whether or not to opt in to the part of the Affordable Care Act that will allow them to add newly eligible individuals to their Medicaid roles. As many individuals with behavioral health needs are single adults that would qualify for Medicaid if expansion in their states were to move forward, the issue of potential expansion becomes particularly relevant. To help describe what’s at stake, and how an expanded Medicaid program would work, The CAFE TAC is pleased to share this new Focus on Medicaid expansion.

Please check it out today!”

  • Dec, Mon, 2012

2011 State Long-Term Services and Supports Scorecard Results

Raising Expectations: A State Scorecard on Long-Term Services and Supports (LTSS)for Older Adults, People with Physical Disabilities, and Family Caregivers

This tool is the first of its kind and is a multi-dimensional approach to measuring state-level performance of long-term services and support systems that provide assistance to older people, adults with disabilities, and family caregivers. A full report is available at www.longtermscorecard.org.

* The numbers shown in the report that could be served if services were expanded are believed to be low due to lack of record keeping of those requesting LTSS/HCBS (Home & Community Based Services) and lack of individuals requesting LTSS/HCBS due to lack of knowledge of what is or might be available.

View a fact sheet regarding the 2011 LTSS Scorecard Results

  • Dec, Tue, 2012

Presidential Proclamation — International Day of Persons with Disabilities 2012

December 3rd, 2012 is now the International Day of Persons with Disabilities!

BY THE PRESIDENT OF THE UNITED STATES OF AMERICA
A PROCLAMATION

Americans have always understood that each of us is entitled to a set of fundamental freedoms and protections under the law, and that when everyone gets a fair shot at opportunity, all of us do better. For more than two decades, our country has upheld those basic promises for persons with disabilities through the Americans with Disabilities Act — a sweeping civil rights bill that moved our Nation forward in the journey to equality for all. And from making health care more affordable to ensuring new technologies are accessible, we have continued to build on that progress, guided by the belief that equal access and equal opportunity are common principles that unite us as one Nation.

On the 20th International Day of Persons with Disabilities, we reaffirm that the struggle to ensure the rights of every person does not end at our borders, but extends to every country and every community. It continues for the woman who is at greater risk of abuse because of a disability and for the child who is denied the chance to get an education because of the way he was born. It goes on for the 1 billion people with disabilities worldwide who all too often cannot attend school, find work, access medical care, or receive fair treatment. These injustices are an affront to our shared humanity — which is why the United States has joined 153 other countries around the world in signing the Convention on the Rights of Persons with Disabilities, which calls on all nations to establish protections and liberties like those afforded under the Americans with Disabilities Act. While Americans with disabilities already enjoy these rights at home, they frequently face barriers when they travel, conduct business, study, or reside overseas. Ratifying the Convention in the Senate would reaffirm America’s position as the global leader on disability rights and better position us to encourage progress toward inclusion, equal opportunity, full participation, independent living, and economic self-sufficiency for persons with disabilities worldwide.

We have come far in the long march to achieve equal opportunity for all. But even as we partner with countries across the globe in affirming universal human rights, we know our work will not be finished until the inherent dignity and worth of all persons with disabilities is guaranteed. Today, let us renew our commitment to meeting that challenge here in the United States, and let us redouble our efforts to build new paths to participation, empowerment, and progress around the world.

NOW, THEREFORE, I, BARACK OBAMA, President of the United States of America, by virtue of the authority vested in me by the Constitution and the laws of the United States, do hereby proclaim December 3, 2012, as International Day of Persons with Disabilities. I call on all Americans to observe this day with appropriate ceremonies, activities, and programs.

IN WITNESS WHEREOF, I have hereunto set my hand this third day of December, in the year of our Lord two thousand twelve, and of the Independence of the United States of America the two hundred and thirty-seventh.

BARACK OBAMA

  • Dec, Mon, 2012

Toby Raises Money for His School

Toby, a young boy born with spina bifida, turned five in July. He has had eight surgeries and countless procedures during his short life. Toby’s old principal bought him a new bike and gave him the opportunity to be independent and confident while traveling at school. Before this, he was being pushed in a wheelchair from place to place.

     On October 25th, 2012, Toby rode his red tricycle in the Boosterthon for his school. The money raised went towards purchasing a sunshade for the school playground. Disability Connection donated $1 per lap and Toby completed 30 laps.  Go Toby!

  • Aug, Thu, 2012

Dempster Family Foundation

This is a very good example of putting your fame to good use. Ryan Dempster former pitcher of the Chicago Cubs, now with the Texas Rangers, has decided to use his notability to promote awareness of a little known syndrome that affects almost as many people as Down Syndrome. It is called 22Q11.2 Deletion Syndrome. Ryan first became aware of this syndrome when his daughter was diagnosed as an infant. She is now three years old. Ryan and his wife, Jenny, are also some of the most vocal about the need for testing newborn babies. To read more about the syndrome or for some helpful resources, check out the Dempster Family Foundation.
Dempster Family Foundation

  • Aug, Wed, 2012

Bethany Burnette

This young lady is an inspiration. She has over come many challenges to get to where she is today. As a young girl, everybody just thought she was “a dumb kid” or “a little slow” and that she would never finish school. Bethany was shy in school but she would shine on stage. She was into acting, singing, dancing, and most of all beauty pageants. Finally in high school one of her teachers mentioned to her parents that she might be Autistic. Sure enough, the doctor confirmed it. Now is a recording artist who performs at many different venues. She has even performed the National Anthem at a Mississippi Surge hockey game.

The Official Site of Bethany Burnette